UVA Health System Blog

Stories about the patients, staff and services of UVA

 

What’s Your Sleep IQ? Take This ‘Pop’ Quiz to Win a Massage!

On January 29, 2013 | At 9:09 am

Sleep. We all do it — but how much do we truly know about it? Like other things that we tend to learn about through family, community and popular culture, we may have ideas that are correct according to conventional wisdom but aren’t quite scientifically accurate.

Take this pop-culture-inspired quiz to find out your sleep IQ and be entered to win a free one-and-a-half-hour massage!

Having trouble? You can find all the quiz answers in these posts:

Contest Rules

No purchase necessary to enter or win. A purchase or payment of any kind will not increase your chances of winning. Void where prohibited. To enter, take this quiz and enter your name and email address on this quiz by 12 a.m. Eastern Standard Time on Wednesday, February 6, 2013. One entry per person. Open to legal U.S. residents 18 years or older who live in the cities of Charlottesville, Waynesboro or Staunton or the counties of Albemarle, Nelson, Greene, Fluvanna, Augusta, Orange or Louisa. One (1) prize will be randomly drawn from all eligible entries. Odds of winning are dependent on the number of entries received. Winners will be notified via email. Winner is responsible for complying with any applicable federal or state laws pertaining to taxes, Medicaid and Medicare. Winner agrees to have his or her name shared via this website and other UVA Health System websites.

 
 

The Necessity of Sleep: Why Your Teen Isn’t Lazy and Your Kids Aren’t Crazy

On January 28, 2013 | At 8:26 am

Your teenage child doesn’t go to sleep on time — or wake up in time for school. His grades are slipping.

Your school-age child can’t sit still in class. She seems hyperactive.

Your toddler treats bedtime like an invitation to literally bounce off the walls.

Kids need ten hours of sleep a night to stay healthy.

Kids need ten hours of sleep a night to stay healthy.

You’re losing sleep, too — not knowing what to do about your teen, who seems lazy, or your kids, who seem hyperactive and out of control.

Enter Pearl Yu, MD. According to her, all of these issues, and more, could be related to an underlying need for sleep.

Yu is on a mission to get people to go to sleep. “Our society does not respect sleep at all,” she says. “We think it’s a failure to need sleep. I’m trying to dispel that.”

Disrespected Sleep

Yu is nothing if not passionate about the necessity of sleep.

A pediatric sleep specialist, Yu sees the gamut of sleep issues in her office, from bedwetting to sleep terrors. Mostly, though, parents come to her with kids whose problem is basic: The kids are overtired and need sleep.

To which Yu says, “The most common reason a kid is sleepy is the kid isn’t spending enough time in bed asleep.”

This seems like a simple solution. Herself a parent of two, she empathizes with the challenges parents face getting enough quality time with their kids. “I’m a pretty practical person,” she says. “The morning and evening times are the most precious times with your kids, especially for working parents.”

And then there’s the issue of sports or other after-school activities — basketball, football, soccer — that end as late as 10:30 at night. “It’s ridiculous,” she says. “Not respectful of the fact that kids need sleep.”

According to Yu, school-age children need 10 hours of sleep every night. “They should be asleep by 8:30 p.m. if they wake up at 6:30 a.m.,” she says. Ideally, it should take half an hour (or less) to fall asleep.

Not allowing enough time for sleep is just one factor. Other factors that can interfere with a child or teenager’s sleep:

  • Developmental changes
  • New school or other life changes
  • Exercising too close to bedtime
  • Not exercising at all
  • Nutrition and weight
  • TVs, computers and other distractions in the bedroom
  • Genetic predispositions for different sleep cycles
  • Sleep disorders

And not getting enough sleep can take its toll on children in a range of ways.

The Dangers of Sleep Deprivation

While our society places little priority on sleep, Yu sees the serious consequences of sleep deprivation all the time — harm to a child’s:

  • Mood, causing depression
  • Behavior
  • Learning and success at school
  • Peer relationships
  • Self-esteem

Without enough sleep, Dr. Yu explains, “You’re grumpy, you’re grouchy, you don’t have tolerance and it’s hard to focus and take things in.”

She points to the example of a teen who was “failing in school, had a bad attitude, couldn’t listen. I did a full workup,” she says, and discovered “the kid needed a lot of sleep — like 10-12 hours of sleep — he was very sleep deprived. So I wrote a letter to his school asking if the kid could come in at 10 a.m. — and he’s thriving now; he’s a very bright kid who was just really tired.”

School performance is not the only aspect of a child’s life endangered by lack of sleep.

“In children with a predisposition for parasomnias (events arising out of sleep, such as bedwetting, sleep terrors, sleepwalking and sleep talking),” she notes “sleep deprivation can exacerbate these events in terms of frequency and severity.”

One child, she remembers, suffered from sleep deprivation for a full week, which triggered a sleepwalking incident. “She almost killed herself,” Yu explains. “The girl jumped off a one-story building, landed on the grass and fractured her arm.”

Another danger is misdiagnosis and all the consequences that follow.

Sleep issues often get masked by other diagnoses, like ADHD. Toddlers and school-age kids, when sleep deprived, often display counterintuitive behavior, “bouncing off the walls because they’re so tired they don’t know what to do with themselves.” Giving these kids Ritalin, a stimulant, for being hyperactive doesn’t make sense — why would you give a hyperactive child a stimulant?) unless you consider that the stimulant may actually be working to treat exhaustion from sleep deprivation. Yu makes the caveat that not all ADHD children have sleep problems; but if you have a child with ADHD with undiagnosed or untreated sleep issues, the ADHD may be more difficult to control.

Yu estimates that “about 30% of kids diagnosed with ADHD have an underlying sleep issue that needs to be treated; even if it doesn’t get rid of ADHD, addressing the issue of sleep can make everything else easier to treat.”

Sleep, Assessed

When a parent brings a teen or school-age child with sleep issues to her office, Yu is thorough. She takes a full history, accounting for life disruptions, developmental changes, anything that can affect sleep. She rules out and accounts for pathological sleep problems, disabilities, parental interactions, anxiety, the environment, obstructive sleep apnea and other sleep disorders in order to get a full picture.

Often Yu diagnoses teens with delayed sleep phase syndrome, which just means that there’s “a mismatch between when your body is ready to go to sleep and wake up and your environment. It’s only a problem if you’re forced to be on a schedule.”

Many people, Yu says, have this syndrome, but compensate for it. “They can walk around sleep deprived and still be high-functioning. They live with it and suffer, having no idea.” Others, however, “can’t tolerate any sleep deprivation; it causes depression, mood disorders, weight gain. It depends on genetic variability as to how much sleep deprivation you can tolerate.”

One patient came to Yu with insomnia. “This 14-year-old girl was trying so hard to go to bed at 9 p.m. She had no TV in her room, no computer, kept her room dark, but no matter what, she still couldn’t fall asleep until midnight. She definitely had anxiety going to sleep.” Once Yu diagnosed the teen with delayed sleep phase syndrome and encouraged her schedule to be adjusted, the struggle to sleep completely disappeared.

Yu says the girl was grateful to discover “’that’s what I have and everyone tells me I’m lazy!’” The parent, too, Yu says, was relieved. “She said, ‘Is this genetic? Oh my goodness, I’ve had this problem all my life and no one has told me this!’”

Sleep Aids?

Yu’s best answer for most sleep issues is for people to listen to their own bodies. “If you’re not ready to go to sleep until midnight, you can’t take a sleep aid at 8 and think you’ll be asleep at 9. Sleep aids wear off over time. I can give you stimulants to get you through the day and help you be functional, but you have to catch up on your sleep. They will eventually become ineffective.”

She advises patients to figure out how much sleep they need and how much sleep deprivation they can tolerate and then make reasonable schedule and environmental changes to fit their individual sleep requirements.

Yu told one student bluntly that due to her body clock, she probably would not be happy pursuing a career as an orthopedic surgeon. “I had to counsel her,” she says. “She could probably compensate for a while with the long hours, but for a whole career where you have to get up at 4 a.m.? She’d be very unhappy.”

The basic message: “I tell my patients no medicine will replace sleep.”

Sleep Strategies and Treatment

“What I offer is a tailored program,” Yu explains, referring to the services she offers in her main location at the Forest Lakes Health Center in Charlottesville. She also has satellite clinics in Culpeper once monthly and in Fishersville twice monthly.

She advises parents to get referrals from their primary care doctor or pediatrician earlier rather than later. “When I see what a kid has gone through already, it makes me sad, when I could have helped.”

Does your child or teen have sleep or behavior problems?

Call to make an appointment.

Filed under : Children's Hospital,Healthy Living | By Amy Marshall
Comments : 0 |
 
 

Diabetes: Managed Without Medication?

On January 24, 2013 | At 11:20 am

A just-launched study at the UVA School of Medicine is investigating whether patients newly diagnosed with type 2 diabetes can safely manage their condition without medication.

The study, which is led by UVA researcher Daniel Cox, PhD, involves a large education component and aims to provide participants with the tools they need to make healthier decisions.

Cox notes that learning better ways to cope with type 2 diabetes will become increasingly important given the rapidly growing numbers of those living with the condition.

Read more about the study.

Email us for more information.

Filed under : Healthy Living,Research | By Dave Hendrick
Comments : 0 |
 
 

The Dream of the Sleeping Baby

On January 22, 2013 | At 9:00 am

Books abound. Opinions swirl. How best to get babies to sleep is one of those hot topics forever discussed and never resolved, fodder for both satire and debates.

How to get your baby to sleep, and why it's so hard to do so in the first place.

How to get your baby to sleep, and why it's so hard to do so in the first place.

Emily Drake, PhD, RN, CNL, is familiar with the research, opinions, fads and practical realities of infant sleep. A labor and delivery nurse at UVA for over 10 years with extensive experience as a lactation consultant, her focus has always been with new families, sleep safety, infant sleep and breastfeeding and lack of sleep in new mothers as a potential cause for depression.

We spoke with Drake, also an associate professor at the UVA School of Nursing, to get a medical perspective and some practical tips.

Unreasonable Expectations: Why Is It So Hard to Get Babies to Sleep?

It turns out that the problem isn’t the baby; it’s us.

Drake explains that, “for a fetus, the sleep-wake cycle is every twenty minutes; we watch this in ultrasound. So when they come out, and we suddenly want them to sleep or wake for 12 hours? They’re not having a problem; we’re having a problem. We may want to get them into an adult cycle as soon as possible. But you just have to wait for them to grow.”

Sleeping Through the Night: 0-6 Months

Drake knows people may be tempted to say that their baby is sleeping through the night  even when they are not because they fear they’ll be labeled bad parents.

But the shame is misplaced. Infant development directly affects the ability to sleep. “Babies’ stomachs are tiny — the size of a pingpong ball — so they can’t go very long without something to eat again,” Drake says. “So you’re lucky to get 2-3 hours of sleep. “

This is good news for parents who feel guilty or inadequate when their infants don’t sleep in longer stretches. “If they sleep 2-3 hours twice in one night, that’s considered sleeping through the night.”

Not only that, but how much a baby sleeps also depends upon “genetic predisposition, temperaments and personalities. There’s a whole range of factors. Some babies are easily stimulated and very sensitive; some are laid back and sleep through everything.”

Either way, how much your baby sleeps in the beginning is mostly out of your control. “You have to play with what you’ve got,” Drake concludes.

Sleep Training

Longer sleep becomes possible as the baby grows. At about 12 pounds or 6 months, a baby’s stomach is usually big enough to sleep through the night, and parents can start sleep training.

Sure, everyone sleeps, but we all have to learn how often and how long to sleep. Studies show both infants and adults wake several times throughout the night, Drake says. Sleep training is about teaching a baby or child to learn how to get back to sleep on their own.

She heavily advises routine. “Putting the baby to sleep and waking up at the same time each day really helps establish an internal clock that will make sleep much easier. Babies love patterns and routines, mostly because they can’t tell time and they don’t speak English, so all they have to go by is what happened yesterday.”

She also suggests putting babies down to sleep while they’re still a little awake. “If you walk, rock or feed the baby to sleep, when it wakes, it will want that same soothing action to go to sleep again.”
If the baby or child wakes up:

  • Don’t turn the lights on
  • No talking
  • Pat them
  • Take or walk them back to bed
  • Keep it super low key

Drake encourages parents to not give up. “You should know that sleep concerns are common and normal, but that teaching the baby to sleep well is a life skill that they’ll appreciate the rest of their lives. “

Want to Know More About Babies and Sleep?

Drake recommends the book “The Happiest Baby on the Block” for being the most easy and workable guide to sleep training in a sea of advice.

In the Charlottesville area? You an also attend her free spring seminar for parents:

Tackling the Challenging Sleep Problems of Children
Children, Youth and Family Services
Saturday, March 9
10 a.m. – noon
Free childcare (limited)
Register now: Call 434.296.4118, ext. 0

Or try a parenting class at UVA.

Filed under : Children's Hospital,Healthy Living | By Amy Marshall
Comments : 0 |
 
 

In Their Own Homes: New Program Provides Nursing Home Alternative

On January 19, 2013 | At 10:38 am

Central Virginia seniors will soon have another option for medical care, companionship and independent living.

This week UVA, in partnership with the Jefferson Area Board for Aging and Riverside Health System, broke ground on the Blue Ridge Program of All-Inclusive Care for the Elderly, or PACE.

The PACE Center in Charlottesville will be open to residents ages 55 and older.

The center aims to offer an alternative to nursing homes and will offer access to medical care, meals, social activities and transportation.

Learn more about the new PACE center.

Filed under : Events,Healthy Living,Men's Health,Women's Health | By Dave Hendrick
Comments : 0 |
 
 

Insomnia? Get Some SHUTi

On January 18, 2013 | At 10:20 am

Like so many of us, Milisa Galazzi was having trouble sleeping.

A busy artist, mother of teenage sons and manager of her family’s day camp, Galazzi assumed that lying awake for part of the night just came with the territory of keeping track of so many responsibilities.

It took an almost sleepless sleep study for her doctor to suggest the difficulty in getting to sleep could actually be a sleep disorder.

“I had no idea I had insomnia, I just knew I had trouble sleeping,” Galazzi says. “I guess my insomnia got so bad over time that I did not realize how bad it actually was.”

Milisa Galazzi says the SHUTi program greatly improved her sleep.

Galazzi, who lives in Rhode Island, says she was interested in learning how to sleep better but did not have the time to travel two hours away to a sleep center. It was then that her doctor suggested she consider SHUTi, an Internet-based behavioral therapy program that researchers at UVA have been fine-tuning for nearly a decade.

Says Galazzi: “Because SHUTi is online, my doctor thought it might be a good solution given my schedule. He was more than right!”

Sleep Health: The Online Program

Psychologist Lee Ritterband and his UVA colleagues have long been interested in the intersection between technology and therapy.

In 2004, a grant from the National Institutes of Health (NIH) allowed them to build their SHUTi (Sleep Health Using the Internet) program.

The system uses a combination of the traditional cognitive behavioral therapy strategies used to treat insomnia with additional technologically enhanced exercises available to anyone with an Internet connection.

Users of the program keeps a regular online diary of their sleep experiences, and the program customizes its recommendations based on the input. So each user has a unique experience and receives personalized instructions.

The SHUTi program aims to get a user to roughly 85 percent “sleep efficiency,” meaning that 85 percent of the time spent in bed is spent sleeping, which doctors typically think of as the goal for ‘normal’ sleep.

“As a user, you put in your sleep diary information each day, and the system will use an algorithm to generate a sleep window that fits your sleep pattern,” Ritterband says. “The goal is that we consolidate your sleep so that you’re sleeping more efficiently – then we can stretch the amount of time you’re in bed sleeping.”

The program contains a series of steps and can be completed in as few as 6 weeks, but usually takes a few months.

Expanding Beyond the Clinic

Like many innovations, the treatment began within a clinical trial in 2006. According to Ritterband, the director of the Behavioral Health and Technology Lab in the Department of Psychiatry and Neurobehavioral Sciences at UVA’s School of Medicine, it became clear early on that the treatment was an effective one that could benefit a wider audience.

“The trial went really well,” Ritterband says. “We published the data in 2009 in a high-impact journal, and it generated more interest than we were ready for or equipped to deal with.”  The paper led to a great deal of press coverage; Ritterband and his colleagues have been featured on “Good Morning America,” NPR, The New York Times, and USA Today, among many other outlets.

As the buzz around the program grew, Ritterband and his colleagues were approached by businesses interested in spinning the program out beyond UVA, and the group decided to form a commercial unit with the help of the UVA Patent Foundation: BeHealth Solutions, Inc.

“Creating a startup company allows us to really focus on dissemination,” Ritterband says. “We wanted to get it out there. Otherwise, we’d have this effective program that would just sit on a shelf. We didn’t want that to happen. When people asked us how they could access the program, we wanted to have an option for them.”

Unlike the clinical trials, the commercial version is available to anyone. It’s the version used with success by Galazzi, for instance.

Research into Sleep Issues Continues

Meanwhile, Ritterband, who is also the co-founder and president of the International Society for Research on Internet Interventions, and colleagues continue to test the effectiveness of SHUTi.

The researchers received a new NIH grant in 2010, allowing them to study 300 individuals nationally and track their progress on a long-term basis. The maturing framework of the platform is also allowing them to take the program worldwide, tailoring the course of therapy to Australians and Norwegians, for instance.

Another emerging aspect of SHUTi involves insomnia issues for patients with diseases such as cancer, diabetes or depression.

Depression appears to be a particularly fruitful area for research, Ritterband says.

“Insomnia is not always just a symptom of depression. It can be a unique and co-morbid condition,” says Ritterband. “The field of insomnia has moved away from the idea of insomnia always being just a consequence of depression but really being a separate and distinct entity that can actually even be a predictor of or risk factor for depression or anxiety.” Two trials focused on this intersection of insomnia and depression using SHUTi will be launched in Australia this year.

In some cases the SHUTi developers are licensing the software for other clinical researchers across the country.

Better Sleep

In her case, Galazzi says it took about two weeks to develop healthier attitudes about her sleep and about a month before she was truly sleeping better.

“The program taught me about my sleep efficiency, my personal sleep window, my sleep attitudes and how to monitor my sleep patterns, Galazzi says. “It’s really a well-designed, very informative, easy to use, helpful platform.”

Sleep Tips: Three Ways to Get Better Sleep Now:

  • Don’t go into bed if you aren’t sleepy.
  • Don’t stay in bed for more than 20 minutes if you are not asleep.
  • Only use the bed for sleep and sex

Learn more about the SHUTi program.

Filed under : Healthy Living,Technology | By Dave Hendrick
Comments : 0 |
 
 

‘Finally Joining the Sleeping People’ — A Life with Sleep Apnea

On January 17, 2013 | At 10:45 am

You probably know someone living with sleep apnea. It could be your mom or dad, your brother or sister. You might even have this extremely common sleep disorder.

According to Paul Suratt, MD, a UVA sleep specialist, about 20 to 25 percent of men and 10 percent of women have this disorder.

grahm reynolds

UVA patient Grahm Reynolds

I recently spoke with a UVA patient living with sleep apnea, Grahm Reynolds, to learn more about what it’s like to live with this disorder.

What is Sleep Apnea?

Sleep apnea is a condition characterized by multiple breath interruptions while you’re asleep, severely affecting your quality of sleep.

Apnea is a Greek word that literally means to deprive breath, and when this happens while you’re asleep, it makes waking up unsatisfactory and going about your day-to-day routine difficult.

Sleep apnea can be deadly. A sleep apnea sufferer may wake up gasping for air.

Reynolds, for instance, describes his state before being seen and treated at UVA as “drowning.” After “sleeping” for eight hours, he would wake up feeling as if he had slept for a fraction of that.

He describes living in a haze and feeling a sense of frustration over never being able to feel fully refreshed after sleeping. Even worse, Reynolds wasn’t sure if he really had a sleep disorder. It can be hard to know whether your sense of tiredness is connected to an actual, real sleep disorder or just being restless at night sometimes. Looking back at his 20’s, Reynolds can now clearly see he spent much of that time sleep deprived.

What’s a Sleep Study Like?

After moving to Charlottesville, one of Reynolds’ first appointments was with Lisa Martinez, MD, who recommended he enroll in a sleep study.

He described the sleep study experience as “electrode city.” There are a lot of wires and pads hooked up to a patient’s head and chest during a sleep study in order to monitor as many signs as possible. The whole process is painless, though.

After the first half of the study he was confirmed as having sleep apnea. In the second half of the night the doctor and technician had him sleep with a CPAP (continuous positive airway pressure) mask. The mask is relatively small and usually goes over your nose. It blows constant air through your nose to stop any tissue that would block the airway from collapsing. Your doctor sets the machine to have the perfect amount of air pressure to meet your sleeping needs.

A Healthier Rest

It was a pivotal point for Reynolds: “Finally joining the sleeping people.” It also pushed him to start living a healthier life. He started eating better and working out and has seen great results. Losing some weight allowed for the air pressure control on his CPAP to be lowered, making for an even more comfortable and restful sleep.

It’s a change in lifestyle. Your CPAP becomes your right-hand man. Reynolds did bring up that traveling can’t be as spontaneous as it used to be, but it’s definitely still an option. It just requires a bit of planning ahead.

Next Steps

If you have been having sleep issues, make sure to bring them up with your primary care doctor who, in the case of severe sleep problems, can refer you to a sleep specialist. Find a UVA primary care doctor.

UVA’s Sleep Disorders Center in Charlottesville has researchers and doctors who are able to diagnose and treat sleep apnea amongst many other sleep issues.

Check out this video to learn more about sleep apnea, and to get an inside look at what it’s like to go through a sleep study.

Filed under : Healthy Living | By Katerina Diplas
Comments :1 |
 
 

A Night at the Sleep Center: Video

On January 11, 2013 | At 10:47 am

Your wake up in the morning feeling like you haven’t slept at all.

Your partner complains about your loud, almost violent snoring.

You have trouble getting to sleep, and when you do, you often wake up many times during the night.

These sorts of sleep issues are very common, but don’t have to be permanent.

Doctors and researchers at UVA’s Sleep Disorders Center in Charlottesville are able to diagnose and treat all sorts of sleep issues.

Patients referred to the sleep center usually stay in a hotel-like room for a night, allowing doctors and technicians to monitor their sleeping and breathing habits.

The most common reason for coming to the sleep center is sleep apnea, a potentially deadly — but treatable — disorder involving difficulty breathing while sleeping.

Check this video to learn more about how the sleep center can help you!

 

 

Filed under : Healthy Living,Primary Care | By Dave Hendrick
Comments : 0 |
 
 

All About Sleep (Plus a Giveaway)

On January 10, 2013 | At 8:28 am

Sleep. We all need it. And chances are, you’ve had trouble getting it at some point in your life.

All About SleepThis month, we’re exploring sleep — including how it affects your body and the conditions and factors that can cause poor sleep.

Plus, we’ll have tips on how to get kids to sleep and some advice for you on getting a good night’s rest.

Win a Free Massage

And be sure to pay attention all this month. We’re giving away two gift certificates for a free massage from Jen Teal in Charlottesville! We’ll post quizzes later in the month, and all you have to do is take the quizzes to be entered to win!

Sweet Dreams!

Filed under : Healthy Living | By Jennifer Stover
Comments : 0 |
 
 

How My Mother Died: A Daughter’s Story of HIV/AIDS

On November 30, 2012 | At 10:29 am

It took Teshema Anderson a long time to feel comfortable telling people how her mother died.

A well-dressed, professional-looking woman with a beaming smile, happy family and successful career who speaks openly and with conviction, it’s hard to believe she ever felt scared of anything. But when it came to her mother, she did.

“It was really scary for me to tell anyone,” she admits. “Some of my friends knew, my husband knew, my daughter knew, but other than that no one knew what my mom died of.”

HIV/AIDS still carries a stigma. “I felt like that stigma would be attached to me; I didn’t want to be out sipping off drinks and people feeling uncomfortable. People think the craziest things when it comes to it.”

Then Teshema started working at UVA’s Infectious Disease Clinic — which houses the Ryan White Program — where she found that, “Everyone is warm and welcoming and cares about each patient,” and she discovered a newfound courage to share her story.

“Now it’s different: I’m not ashamed. I can say, ‘I’m Teshema. I had a mom, she passed away, and this is how she passed away. My mother died of AIDS.’”

A Mother Lost: Dying from AIDS

Teshema and her mother, years before her mother got infected with HIV.

Teshema and her mother, years before her mother got infected with HIV.

It was 1997. Teshema was 17 when her mother called with the news.

“I knew before she said it,” Teshema says. “She’d been in the hospital with chronic pneumonia and was getting smaller.”

Her mother had been afraid to tell Teshema that she had AIDS. “I told her, ‘I don’t care. I’m going to love you regardless of anything you tell me.’”

Ten years later, her mother was taking so many pills every day she told her daughter that she was “done. She was looking for my permission to give in, and I gave it to her. She just wanted to make sure that I wouldn’t hold it against her or be upset that she had decided not to fight anymore. So she stopped taking her medicine. She wouldn’t eat. They would try to give her IV fluids, and she would pull it out. Her sisters, brother, they all wanted her to fight. I knew she was exhausted.”

Teshema’s mom died at just 43 years old. She and a sibling who died from AIDS had both used crack cocaine — a behavior that doesn’t expose a person to HIV, but can lead to risky activities that do.

“I found her crack pipe when I was 12,” Teshema says. “I knew what it was.” By 13, she and her mother were evicted; by 14, Teshema was living with relatives.

“When I was young, I thought if she loved me enough she would stop this drug. It’s crippling to think your parent would choose drugs over you. As an adult, I know my mom loved me, and she did the best she could. If it was that easy, she would have stopped to save herself.”

Working at the Clinic: AIDS in Charlottesville

Teshema glows when she talks about the Infectious Disease Clinic. From the start, “Everyone was warm and welcoming, and it’s very exciting to know all the things going on here. Everyone I know loves their job. They care about their patients more than any clinic I’ve been in. They are completely dedicated and loving. From the front desk staff to the doctors, they do whatever they can to keep patients in care.”

For example, the clinic gives patients who are homeless cell phones to stay in contact with the clinic. The patients can come in to charge them when they need to.

She felt it was a kind of kismet that she got the job. While the clinic treats a range of conditions, from Hepatitis C and staph infections to shots for people traveling overseas, the majority of the 25-50 patients seen on a daily basis are HIV positive.

But most people don’t know that. Teshema notes that HIV/AIDS lacks the visibility it once had when more people got sick and died from the disease. Now, “No one thinks it can happen to them. They think, ‘It’s not in Charlottesville. It’s a wealthy town; even the poor people are OK here. It’s not DC or NY. We’re doing OK; Cville is doing OK. It’s not here.’ But it is here.”  And they are people from all walks of life — people no one would guess were infected.

“Patients come into the clinic both white and black, every segment of the population,” including lawyers, professors, and doctors who travel from out of town, so nobody in their own circles will see them.

These are the people who “come in and have the means to support themselves and they’re functioning and making it.”

Then there are people who remind her of her mother. “They come in when they want to. It’s not something they want to accept.” Like her mother, “They don’t eat properly or take care of themselves in any way. It’s just they would rather be getting high.”

She does see a huge population of African-American women. “I hate to say it, but it seems like it’s the last thing on their minds. Condom use – not something they buy, do, they don’t prepare. They just don’t believe they feel it can happen to them.

I hate to be the person who says, ‘Well you know my mom died of AIDS, it IS possible,’ but I do talk to my friends about it. It’s disheartening and scary that most people don’t know they have it.”

Teshema at the recent AIDS Walk in Charlottesville.

Teshema at the recent AIDS Walk in Charlottesville.

AIDS Walk: Grief and Memory

Every day, as Teshema grieves the loss of her mother, she meets patients at her clinic and watches friends make risky decisions. “Every day is hard,” she says, tears in her eyes. “A disconnect and a loneliness. I have never experienced a loss like that before in my life. I just felt like the person that loved me best was gone.”

Since coming to the clinic, “I felt the love of that community. And I feel a strength that I didn’t know was there, a passion that I didn’t really ever know. I feel I’m honoring her. It helps me heal.”

As part of this honoring and healing, Teshema participated in her first-ever AIDS walk this October, a fundraising event for the local Aids Services Group (ASG). Her teenage daughter joined her. “The AIDS walk meant so much to me, it was one step towards healing — being able to say my mom dealt with this, and she had it, but that’s not all who she was. I’m going to honor her. And make sure that my children understand that this is something that is important.”

And what next? “I sent in my volunteer application already with ASG,” Teshema says proudly. “Seeing how much support, love, and passion, people not ashamed or afraid, really convinced me it’s not something to hide in the shadows. It felt really good. I saw smiling faces. Even though HIV/AIDS is a very serious thing, you got a sense of love from the walk, and acceptance. I wanted to be part of that.”

What Will You Do to Prevent HIV/AIDS?

Get tested; get involved:

Filed under : Healthy Living,The People of UVA | By Amy Marshall
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