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Transplant Support Resources

Information about support groups and other resources for transplant patients.

Support Group for Heart and Lung Transplant Patients and Families

We sponsor a monthly Heart and Lung Transplant Support Group on the fourth Thursday of every month from 11:30 a.m. to 1:30 p.m. Meetings are open to patients, family members and friends. For more information, contact us at 800.257.0757.

Transplant Related Links

General

  • United Network for Organ Sharing (UNOS)
    UNOS facilitates every organ transplant performed in the United States. UNOS assists transplant doctors, patients and members of the public by helping ensure that organs are procured and distributed in a fair and timely manner.

Organ Donation

  • Transplant Recipients International Organization, Inc.
    TRIO is an international organization providing donation awareness and support, advocacy and education for transplant recipients, their families and friends. The TRIO chapter closest to the central Virginia area is the National Capital Chapter of TRIO.
  • TransWeb
    TransWeb is a nonprofit educational resource serving the world transplant community. TransWeb features news and events, real people's experiences, the top 10 myths about donation, a donation quiz and a reference area.
  • Organ Transplant List Serv
    A discussion list for organ transplant recipients and anyone else interested in the issues, experiences and realities of living with an organ transplant.
  • LifeNet
    LifeNet is the largest full-service, nonprofit allograft tissue bank in the United States. This site provides information and helpful resources to donor families, recipients and healthcare professionals.
  • OrganDonor.gov
    The official federal government site for organ and tissue donation and transplantation.
  • The Partnership for Organ Donation
    The Partnership for Organ Donation is an independent nonprofit organization dedicated to improving the donation. 
  • Coalition on Donation
    The Coalition on Donation is a not-for-profit alliance dedicated to educating the public about organ and tissue donation and creating a greater willingness to donate.
  • LifeLink Foundation
    LifeLink Foundation is a nonprofit community service organization dedicated to the recovery of an increasing number of high-quality organs and tissues for transplant therapy.
  • The Living Bank
    A nonprofit organ-donor education organization dedicated to the enhancement of organ and tissue donation and transplantation. Living Bank maintains an organ donor registry that keeps computerized records of organ donor data for future retrieval in an emergency.

Kidney Transplant

  • American Association of Kidney Patients (AAKP)
    AAKP is a voluntary patient organization dedicated to helping kidney patients and their families deal with the impact of kidney disease.
  • National Kidney Foundation
    The National Kidney Foundation, Inc. is a major voluntary health organization seeking to prevent kidney and urinary tract diseases, improve the health and well-being of those affected by these diseases and increase the availability of all organs for transplantation.
  • Forum of End Stage Renal Disease (ESRD) Networks
    A collaboration of individual ERSD groups that provides support to improve the quality of care to people with renal disease.

Pancreas Transplant

Liver Transplant

  • Hepatitis Foundation International
    A foundation dedicated to education, awareness, prevention and research support of viral hepatitis for the public, patients, educators and medical professionals.

Heart Transplant

  • American Heart Association
    A national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.

Lung Transplant

  • Alpha-1 Association
    A nonprofit organization that provides support, education, advocacy and research.
  • The Cystic Fibrosis Foundation
    A donor-supported, nonprofit organization dedicated to finding a cure fir cystic fibrosis (CF) and to improving the quality of life for those with the disease.
  • PHCentral
    A resource for pulmonary arterial hypertension (PAH), providing information and support for patients, caregivers and medical professionals.
  • LAM Foundation
    Provides support, education and hope to women with lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease.
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