Randomized Care Coordination Study for Caregivers of Patients with Dementia, with or without Traumatic Brain Injury

IRB/UVA Tracking #
22553
Principal Investigator
Carol A Manning
Contact
Hillary Perez
Contact Email
Contact Phone
434.924.0453
Official Trial Title
An Innovative Supportive Care Model for Dementia and Traumatic Brain Injury
Study Description

The Department of Neurology Memory and Aging Care Clinic (MACC) seeks adults ages 18 and up who are caregivers of patients with mild-to-moderate dementia with Alzheimer’s or other mixed dementias, with or without a traumatic brain injury, for a research study. The purpose of this research study is to evaluate the benefits of a telehealth-delivered care coordination program for caregivers of patients with dementia with Alzheimer’s disease and/or related dementia, or of a patient with dementia and traumatic brain injury The goal of this study is to provide more effective coordination of services that will demonstrate sustained improvements in caregiver burden, symptoms of depression and quality of life. Participants will be randomly assigned to a treatment or control group.

Study involves the completion of a set of questionnaires at three time points. Participants in treatment groups will be assigned a dementia care manager (DCM) who will meet with them through the online telehealth software at least once monthly over the 12-month study. The DCM will work to assess the needs of the participant and identify support and services that may be beneficial for them. Visit lengths vary, depending on the needs of the participant.

Study-related software for telehealth visits will be provided free of charge to participants in treatment groups.

Compensation

There is no compensation for this study