Research study for adults with and at risk for Huntington’s Disease

IRB/UVA Tracking #
16873
Principal Investigator
Harrison Madaline, B
Contact First Name

Katie

Contact Last Name

Sullivan

Contact Email
Contact Phone
Official Trial Title
Enroll-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort
Study Description

The UVA Parkinson’s Disease and Movement Disorder Center is seeking adults with Huntington’s Disease and those at risk for developing HD for an observational study.

Enroll-HD is a worldwide observational study for Huntington’s Disease families. It will monitor how the disease appears and changes over time in different people, and is open to people who either have HD or are at-risk. Enroll-HD tracks people over time, rather than asking them to recall how their symptoms have changed.

Participants will receive no treatment for their disease during this study. Investigators will provide assessment of participant’s Huntington’s disease once a year.
Study-related assessments will be provided free of charge.

Adults age 18 or older

Participants are eligible for payment to cover the cost of travel based on how far they need to travel from their home to UVA.
Less than 25 miles - $25.00
25-50 miles - $50.00
Greater than 50 miles - $75.00

Compensation

Based on travel